Establishes the rare disease advisory council to identify best practices, raise awareness regarding rare diseases, evaluate barriers to access to care, and to make recommendations to the legislature and the governor.
State of New YorkNew York- Status
- Engrossed
- Passed its first chamber
- Status date
- Mar 19, 2025
- 603 days ago
- Current chamber
- Assembly
- Session
- 2025-2026 Regular Session
NY S 1287 · EngrossedMar 19
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Bill details
- Last action
- returned to senate · Mar 10, 2026
Sponsors
RPRoxanne PersaudSenator · Democrat · SD-019Primary sponsorPrimary sponsor
JAJoseph AddabboSenator · Democrat · SD-015
JAJacob AshbySenator · Republican · SD-043
CCCordell CleareSenator · Democrat · SD-030
LCLeroy ComrieSenator · Democrat · SD-014
JCJeremy CooneySenator · Democrat · SD-056
NFNathalia FernandezSenator · Democrat · SD-034
PGPatrick GallivanSenator · Republican · SD-060
Show 7 more sponsors
PHPamela HelmingSenator · Republican · SD-054
BHBrad Hoylman-SigalSenator · Democrat · SD-047
JMJack MartinsSenator · Republican · SD-007
RMRachel MaySenator · Democrat · SD-048
DMDean MurraySenator · Republican · SD-003
GRGustavo RiveraSenator · Democrat · SD-033
LWLea WebbSenator · Democrat · SD-052
Bill history
Newest first.
Mar 10, 2026returned to senateAssembly
Mar 10, 2026passed assemblyAssembly
Mar 10, 2026ordered to third reading cal.47Assembly
Mar 10, 2026substituted for a1296bAssembly
Feb 10, 2026referred to ways and meansAssembly
Feb 10, 2026DELIVERED TO ASSEMBLYSenate
Feb 10, 2026PASSED SENATESenate
Feb 9, 2026ADVANCED TO THIRD READINGSenate
Show 18 earlier actions
Feb 5, 20262ND REPORT CAL.Senate
Feb 4, 20261ST REPORT CAL.283Senate
Jan 8, 2026PRINT NUMBER 1287BSenate
Jan 8, 2026AMEND AND RECOMMIT TO HEALTHSenate
Jan 7, 2026REFERRED TO HEALTHSenate
Jan 7, 2026returned to senateAssembly
Jan 7, 2026died in assemblyAssembly
May 29, 2025ordered to third reading rules cal.291Assembly
May 29, 2025substituted for a1296aAssembly
Mar 19, 2025referred to ways and meansAssembly
Mar 19, 2025DELIVERED TO ASSEMBLYSenate
Mar 19, 2025PASSED SENATESenate
Mar 10, 2025ADVANCED TO THIRD READINGSenate
Mar 5, 20252ND REPORT CAL.Senate
Mar 4, 20251ST REPORT CAL.487Senate
Jan 30, 2025PRINT NUMBER 1287ASenate
Jan 30, 2025AMEND AND RECOMMIT TO HEALTHSenate
Jan 9, 2025REFERRED TO HEALTHSenate
Recorded votes
Senate Health Committee VoteMar 4, 2025 · Senate · 15 yea · 0 nayPassedPassed
Senate Floor Vote - Final PassageMar 19, 2025 · Senate · 60 yea · 0 nayPassedPassed
Senate Health Committee VoteFeb 4, 2026 · Senate · 14 yea · 0 nayPassedPassed
Senate Floor Vote - Final PassageFeb 10, 2026 · Senate · 62 yea · 0 nayPassedPassed
Assembly Floor Vote - Final PassageMar 10, 2026 · Assembly · 143 yea · 0 nayPassedPassed
Read the bill at the source
This page follows the bill as the legislature records it. For the bill's full text and the official record, use the legislature's own site.
Bill data from LegiScan, licensed under CC BY 4.0.